So..... I'm tired (of these posts) and I bet you might be, too. :) But, no matter that that may be, we will press on because there are thousands and thousands of little ones suffering right now who can't speak for themselves who need us to be their voice. I wish I could give every single person a glimpse into some of the things we've seen over the last year and a half-
- to take a walk around the ICS unit
- to see the families - in shock and looking completely shattered - in the days after a new diagnosis
- to FEEL what the words, "Your child has cancer" are like - to feel that feeling in that moment
- to see the look on your little child's face when you have to tell them for the one millionth time, "No, you can't go do (...enter normal kid activity here...), your counts are too low."
- to know the background and personal stories of the cancer families we know
- to see your child getting made fun of by kids at school because they don't have hair or because "they have a boy's haircut"
- to hear from a friend that their child is dying (of the same disease your child has) and the end is coming soon
- to know the frustration that comes when your child, who is off treatment, is suffering from horrible, debilitating late effects of chemotherapy and the doctors won't treat them because the local "Late Effects Clinic" is for those 18 and older
Awareness=Funding=Research=CURES!
Today I just wanted to remind you that September- Childhood Cancer Awareness Month - is ending soon. And I want to leave you with this thought I adapted from GoldtheNewPink's website:
The end of September is nearing. Have you ignited a fire? If not, do it for warriors like Elena. Do it for warriors who no longer fight. Do it for the warriors to come. Do it so no more warriors ever have to fight.
Day 26: Challenge - Take a few minutes to read some things. I wrote a while back about our friends, the Torres', who were holding a gigantic Alex's Lemonade Stand Grand Stand. They had their event last Saturday and it was a big success. Although they didn't reach their goal of $10,000, they came very close and raised $9,300! A tremendous amount of money for childhood cancer research! I want to post two links:
Our cancer friend, Skyler's, mom's recap of their visit to the lemonade stand, so you can get a taste of what it was like.
and
Kristin's (Brinley's mom) recap of the day and some of her feelings about the event. She perfectly captured some very real feelings and provides some great insight into why we fight so hard for awareness and support. I couldn't say it any better myself and she really describes a lot of my feelings.
*** Don't forget to eat at Chili's tonight - tonight is the big donation night!
1 comment:
thanks so much for all your posts, briana. it has been a ton of work but i admire you so for being an advocate for not only elena, but all the little ones who are suffering so. that list you posted breaks my heart. no child or parent should have to endure so much. we talked about elena in our primary class yesterday. tom taught about prayer and how we can pray for people when they're sick. caleb told the class about how he prays for his cousin, elena, who has cancer. it was very sweet. then we had them write down/draw what they could say thank you for in a prayer, and what they could ask for. caleb wrote down that he would ask heavenly father to make elena better. then he drew a picture of elena and jesus. we all love you guys and elena so much and are always thinking of and praying for you! and i hope we all can do a little more than that when the opportunities arise!
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